Radiant, kind, goofy, compassionate, and intelligent are some of the few words Mithil's family and friends would use to describe him. In his 13 short years he managed to be the epitome of all these characteristics. Unfortunately, we lost such a beautiful soul to DIPG on November 27th, 2016.
When you lose someone as precious as a child, a brother, a best friend, there are no words to describe the loss. For our family the only way to begin the process of healing, in this implausible journey of survival, is to support the DIPG community.
How do you react when you are told that your child has DIPG, a disease with a prognosis of about 6-8 months? Where do you look for answers when no one knows what causes DIPG and the prognosis has been the same for the past 60 years?