Our foundation is now one of the project funders for Pediatric Brain Tumor Foundation's The Butterfly Fund family assistance program!
The Pediatric Brain Tumor Foundation’s Butterfly Fund provides emergency financial assistance to families of children in treatment at partnering medical facilities.
Childhood brain tumor treatment regimens are long and intense, requiring many parents to take unpaid leave from work to focus on their child and adding incredible levels of emotional stress on the entire family.
Out-of-pocket expenses, such as housing, transportation and groceries add up, and professional counseling, long-term rehabilitation, and other services often are not covered by insurance. These financial hardships pose serious barriers to patient care and can have devastating effects on all family members.
In 2019 we donated $15k towards DIPG patient support through Butterfly Fund and $10k in 2018. In total we have supported more than 50 DIPG families with housing, car payments, utilities, gas/grocery gift cards and, unfortunately one too many funeral expenses.