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We understand firsthand how devastated you are when you hear your loved ones are diagnosed DIPG/DMG. That is why our co-founder and president Sarva Channarajurs along with 3 other moms - Lisa Ward, Misha Mehta and Stacey Sands collaborated with Slalom to create a resource roadmap for pediatric brain tumor families from diagnosis through treatment and grief support. This is a resource hub created for families, by families who understand. It is a place where we have tried to include topics that will help you understand what DIPG is to getting family support. It was also featured in the White House fact sheet as one of the non-governmental resources for childhood cancer community. READ MORE .... | |
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You may be someone who just wants to get to a trusted person who can walk you through the options available to deal with DIPG/DMG. My DIPG Navigator is just that resource. Many foundations, including ours have partnered with Chad Tough Defeat DIPG Foundation to fund My DIPG Navigator. This free service provides dedicated nurse navigators who offer reliable information to help families understand and manager care for their children with DIPG/DMG. READ MORE .... | |
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Second opinions matter. And we wanted to make sure DIPG/DMG families get that from the best team. The DIPG DMG National Tumor Board is offered as a free service to providers and patients across the United States. The patient, parent, or provider may complete the short form on their website to be screened for eligible participation in the DIPG DMG National Tumor Board. Our foundation is a funding partner of this resource through DDRFA. Especially for patient families and providers who do not reside near a DIPG/DMG center of excellence, they can access valuable advice from the exceptional team on the tumor board. READ MORE .... | |